Thursday, May 31, 2007

For Autism's Sake.....





The following are articles from http://www.greenvilleonline.com/. Please read them and our plea below.


Autism insurance bill lands on governor's desk

Published: Friday, May 25, 2007 - 2:00 am
By Liv OsbyHEALTH WRITER
losby@greenvillenews.com
What's your view?
Click here to add your comment to this story.
A bill that would require insurance coverage for children with autism passed the state House on Thursday and is on its way to the Governor's Office.
Intensive early intervention has been shown to have a remarkable impact on autistic children, helping many of them to become mainstreamed. But it's costly, often more than $50,000 a year, leaving many families unable to afford it, or going into debt to finance it.
If the bill is signed into law by the governor, insurance would pay for treatment for children up to age 16 up to a maximum of $50,000 a year beginning in July 2008.
"We could not be more thrilled and grateful," said Marcella Ridley, a Columbia mother who's been advocating for the measure. "This is landmark legislation."
Read online:
http://www.greenvilleonline.com/apps/pbcs.dll/article?AID=2007705250344



Governor should support coverage for autistic children

Bill would provide needed therapy for young people up to $50,000 a year

Published: Tuesday, May 29, 2007 - 2:00 am
State lawmakers approved a bill that would require private insurance to cover treatment for autistic children. Gov. Sanford should sign the bill.
A spokesman for the governor on Friday said the bill had not yet reached Sanford for his review. In the past, however, Sanford has been reluctant to impose mandates on the insurance industry. The hope among advocates is that he will set aside his personal misgivings and approve this needed legislation.
In 2005, a similar situation arose: Sanford, despite his reservations, allowed a bill to become law that required many private health plans to provide greater coverage for serious mental illness. Sanford refused to sign the bill but neither did he veto it, and by his passive support it became law.

The current autism bill is equally worthwhile. Autism, a disease that can severely impair a young person's ability to communicate, form relationships and adapt to change, is the only neurological disorder not required to be covered by private insurance in South Carolina. The bill would require insurance to pay for treatment for children, age 16 and under, up to a maximum of $50,000 a year beginning in July 2008.

In South Carolina, about 2,000 children under 18 have autism. Advocates argue that early intensive therapy can do wonders for some autistic children. Advocates say that about half of children who get at least 40 hours of therapy a week can enter the first grade on time. Another 40 percent make considerable progress, they say.
But that therapy can cost up to $75,000 a year, putting it out of reach of many families with autistic children. Advocates say families across this state are forced to get second mortgages on their homes or face bankruptcy trying to provide the intervention their children need. Or they face the heart-wrenching experience of placing their children in group homes or institutions -- although there's often a 15-year waiting list for such institutions.
Even though therapy may be costly for insurers, it could save the state considerable sums in the future. An autistic child who receives insufficient treatment sometimes can end up being cared for in an institution at taxpayer expense. That can cost the state $4 million to $7 million for each patient.
Compassionate consideration for children suffering from autism helped persuade state lawmakers to follow the lead of at least 17 other states that require coverage. Early intervention for children also may save the state millions of dollars in the future. Gov. Sanford should sign the bill and give autistic children the opportunity to lead more productive and perhaps even more fulfilling lives.
Read online:
http://www.greenvilleonline.com/apps/pbcs.dll/article?AID=2007705290336




Please help us by calling or emailing SC Governor Sanford's office and let them know you support the bill on his desk requiring private insurance companies to cover medical costs up to $50,000 per child/year with Autism. You can send to anyone and they can put in the comments section on the email on the Governor's website that they know a family in SC or know Kyle, etc. and support this bill....because this could help to set precedent in other states.

Phone number is 803-734-2100 or email at
http://www.scgovernor.com/Contact.asp?sitecontentid=33

We need your help and thank you from the bottom of our hearts...............for our son Kyle!

Thursday, May 17, 2007

Our First Marathon

Things have been really crazy around here. I started this new post last week and am just now getting back to finishing it....sorry for the delay.


The Union Public Safety Department held its first annual Torch Run to benefit Special Olympics on Saturday, May 12th.



They began with a marathon for anyone that wanted to participate, held special events for the kids and ended with a mini-marathon for the special needs children...including an awards ceremony.






Hope you enjoy these photos of Kyle....but especially our little man as he completed his first marathon...all the while playing politician along the way!


Wednesday, May 16, 2007

Who's the child here?

As much as I love the fact that Gator wants to teach Kyle everything, some things have to be thought all the way through!!!

I ended up having to work late today due to a case regarding an adult an two children who may end up in DSS custody.
Anyway, Gator proceeded to call me several times about going to pick up Kyle, supper and lastly to say that he had emailed me these pictures. Now what do you think I was more concerned about at the time.........the safety of that adult and those two children!

The pictures are the big problem! I am so thankful that while Kyle may not yet be verbal, he is very mechanical and fast learner BUT he has a VERY GOOD MEMORY! Now, with my present job at DSS, I think of all the dangers in situations more than ever.
And what problem does learning how to fish off of our front porch cause???? Try heading to the water pond every time the front door opens. Try leaning in to get sticks or leaves out of the water pond every time the front door opens. Try trying to fish out the goldfish out of the water pond every time the front door opens. Try possibly leaning too far off the front porch trying to fish in the water pond every time the front door opens. Get the picture?!?

What shocks me even more is that when Gator called to tell my mother that Kyle was learning how to fish, is that my own mother did not think any of the above scenarios could be possible. My mother who I though I got all of the situational thinking from, thought it was cute. Let's hope that it stays just CUTE!

P.S. Mommy is very proud of you today despite the dangers that lurk around the corner of the house!

Thursday, May 10, 2007

Everyone has a "Dummy" in their life!

For those of you who know me, knows that "Dummy" is my grandmother. For those of you who don't, let me explain. I was born saying "Grandmother"....not Grandma, Granny, etc. I was Dummy's first grandchild and eventually gave her her first great-grandchild. (Please note that Dummy held Kyle before Gator did - and he knew better than to argue with her!.) Gator also had to worry more about telling Dummy than my parents that he had proposed.

Anyway, she and other Dummy (Granddaddy Butch) always took me shopping, out to eat, or just to ride wherever. I was ALWAYS at their house and they have always been a very BIG part of my life. One day, when I was little, Mama and I went out to their house to get something......don't know what.........but they were not at home and Mama sent me in with her key to their house. I left them a note and in it spelled the word dummy wrong - DUMBY! After that it became a running joke and I was able to get away with calling Grandmother something else - albeit Dummy.

And to this day, I receive very weird and sometimes wrongful looks at people who hear me cal
l her this - like at the hospital Monday when she had to be admitted for low blood pressure and dehydration. Yes, the last couple of weeks have been hectic to say the least. First, I had a bad stomach virus that left me nauseous for 10 days - and wondering if we were pregnant (because of this and a very light period, but we have taken 4 p-tests and 2 said "see leaflet" and the other 2 said "not pregnant"). The pregnancy would have opened a whole 'nother can of worms due to the higher risk of another child having Fragile X Syndrome!

Grandmother ended up getting the stomach virus and ended up in the hospital - and guess who ended up having to put her foot down and insist on following doctor's orders - yep ME! Do you know how hard it was to fuss at Dummy! However, dealing with Kyle's autism and FXS has helped me better cope with situations and I was able to keep her laughing all during her admission, tests, blood work, pokes, prods, x-rays, IV hook up, etc. I even promised her M&Ms if she pee peed and poop pooped in the potty.........you have to understand that she does not like chocolate and she was hooked up to the IV, which my mother was holding, while I was holding her very couture hospital gown! (And she will kill me - if my mother doesn't first - if she finds out about this!!!) But it's funny to Mama and me since we are trying to potty train Kyle!

But it was nice to be able to take care of her for a change - you know we all can't live to be 39 (and yes she is still 39 for those of you who know that running joke - if I want to live) Mama is 29 and I am 19. I even climbed in the bed with her to help warm her up because the sheet, 3 blankets and heat on 75 were not doing it.

She was released from the hospital today and Kyle got to ride in her lap down to the car - and everyone in between the room and the front door heard about how he was her first great-grandchild and I was her first grandchild. So, you all may not have a "bad" name to call your grandmother, but make sure you call her.......because one day I won't be able to call her, but she will ALWAYS BE MY DUMMY! And a very beautiful one at that!!!

Tuesday, May 01, 2007

Easter Pics

I wanted to get these Easter photos posted weeks ago; however, a certain Cuz of mine inadvertently downloaded all of the pics on our memory card instead of copying them! So I have been waiting on her to email them to me and I finally received them today.


Due to a migraine that I have had since Saturday night, I'll leave this post short-n-sweet with several photos. I'll do my best to do another post within the next day or so to update you on the latest doctors' appointments. Until then....enjoy!